Inside of me...
Trapped inside this body...
Of epilepsy...
No one can see...
No one can feel...
What it's doin' to meeeee...
I curl over my head...
I lie down in bed...
Shakin' all over...
Inside and out...
Cannot say word...
Yet I want to shout...
Shout out to you...
Can you please come and help...
I feel so alone...
I feel so scared...
I feel as if my whole self is bared
Yet, it is what...what I endure...
Silent disability...
This epilepsy...
What it does to me...
No one truly can see...
Yet, I keep up my fight...
I don't ever quit...
I must never give up...
though I tell ya it's tough...
To let people know...
what I don't want to show...
This silent disability...
This epilepsy...
'Thou in order to heal...
I must let you in...
To know what I feel...
This silent disability...
This epilepsy...
I must let you know...What it does...what it does...
In-si-de of me...
These words I dedicate to all sufferers of silent and invisible disabilities
There are so many more than solely epilepsy
I also dedicate this to all who suffer from PTSD due to various traumas.
ALL VICTIMS OF WAR...
Especially, our soldiers and our veterans
Thank you for reading
Thank you for trying to understand
Thank you for being a part of Beam the Light Be the Change...
En Paz y Amor...
In Peace and Love...
Maria
Maria Juarez Beam
Maria Juarez Boheme
I am re-posting this poem and dedicating this tonight to Gaza.
I wanted such much to be an activist today, but I need to step back and take care of me. For this is what having epilepsy means for me. I need to take really good care of myself and be very aware of my condition or I set myself back and I always wish to move forward for moving forward allows me to do the great work of my heart.
I also dedicate this to my beautiful Allison who called me this morning to loving and gently remind me of this...for oft times I disregard this fact, that I have epilepsy, and I must balance my life. I can live it, I just need to take great care. Before she called I was ready to jump on a plane to Egypt and join the activist who are crossing into Gaza...I want to be a help, not a hindrance. So one day when I am much, much better, and I WILL BE...I WILL BE THERE...Thank you all with my heart and soul for reading and allowing me to express...All my love, Maria
I still need to learn to accept me for me and remember that we can all SHINE...even with this silent disability...
Musical Selection: Earth, Wind, & Fire: Shining Star
BEAM, SHINE, ILLUMINATE...
Thank you sweet Maria. I don't know what to say, more than: Thank you!
ReplyDelete